Roosevelt Institute: Direct Spending on Care Work: Thinking Beyond the Tax Code for Caregiving Infrastructure
Policy report highlights the negative impacts of the current lack of
affordable, quality care choices, and limited paid family leave.
The Ability Lab: Supporting America’s 53 Million Family Caregivers
Policy brief provides an overview of the family caregiver experience and
the current options to support family caregivers. It includes
recommendations to expand and enhance supports for family
caregivers. Includes recommendations for Congress.
Institute for Women’s Policy Research: Promoting Access to Care: Caregiving and Families
This report highlights the nationwide crisis driven by decades of
underinvestment in childcare and long-term care, leaving families
unable to afford needed services and without caregiving support.
Alleviating Barriers for Caregivers (ABC) Act
The bill amends the Public Health Service Act to increase the number of permanent palliative care faculty at: accredited allopathic and osteopathic medical schools; nursing schools; and other programs to promote education and research in palliative care and hospice.
Home and Community-Based Services (HCBS) Relief Act of 2025
This bill temporarily increases the Federal Medical Assistance Percentage (FMAP) by 10 percentage points for Home and Community-Based Services (HCBS) provided during fiscal years 2026 and 2027.
Essential Caregivers Act of 2024
Ensure that essential caregivers of residents of Medicare and Medicaid-funded facilities maintain access to residents during designated emergency periods when visitation is otherwise restricted.
AARP: Valuing the Invaluable 2023 Update, Strengthening Supports for Family Caregivers
Report summarizes the current issues confronting family caregivers,
attempts to “measure” the financial contribution they make, and
describes recent federal and state initiatives to better serve family
caregivers.
Home and Community-Based (HCBS) Access Act
The bill makes Home and Community-Based Services (HCBS) a mandatory Medicaid benefit. It requires states to cover HCBS for individuals with functional impairment that is expected to last at least 90 days.
Better Care Better Jobs Act*
The bill makes Home and Community-Based Services (HCBS) a mandatory Medicaid benefit. It requires states to cover HCBS for individuals with functional impairment that is expected to last at least 90 days.
Administration for Community Living, 2022: National Strategy to Support Family Caregivers
Federal report to Congress outlining the issues family caregivers face.
It provides recommendations for policy and program changes at the
federal, state, local, and private sector levels to better meet the needs
of family caregivers.