{"id":6939,"date":"2026-02-19T22:59:59","date_gmt":"2026-02-19T22:59:59","guid":{"rendered":"https:\/\/exploreltssinitiatives.org\/staging\/4085\/?page_id=6939"},"modified":"2026-05-29T12:14:14","modified_gmt":"2026-05-29T12:14:14","slug":"caregiving-additional-reading","status":"publish","type":"page","link":"https:\/\/exploreltssinitiatives.org\/staging\/4085\/caregiving-additional-reading","title":{"rendered":"Caregiving Additional Reading"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"6939\" class=\"elementor elementor-6939\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-251326f e-flex e-con-boxed e-con e-parent\" data-id=\"251326f\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-18d7268 e-con-full e-flex e-con e-child\" data-id=\"18d7268\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-9860017 elementor-widget elementor-widget-heading\" data-id=\"9860017\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Caregiving Compendium Additional Reading<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-99804ae elementor-widget elementor-widget-heading\" data-id=\"99804ae\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">The resources below provide additional context to support a deeper understanding of family caregiving policy, research, and lived experience. <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-d36e544 e-flex e-con-boxed e-con e-parent\" data-id=\"d36e544\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-57041b4 e-con-full e-flex e-con e-child\" data-id=\"57041b4\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b844525 elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"b844525\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Organized by key topic areas reflected in the compendium, these materials highlight the breadth of evidence shaping federal and state approaches to caregiving\u2014including program design, financial impacts, workplace policies, and national frameworks. Together, they offer insights into how caregiving functions across systems, how policies influence real-world experiences, and where opportunities exist to strengthen support for family caregivers.<\/p><p><em><strong>Note: <\/strong>These resources are supplementary and do not duplicate reports included in the Policy and Advocacy analyses.<\/em><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8a366bd elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"8a366bd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-c4c8112 e-flex e-con-boxed e-con e-parent\" data-id=\"c4c8112\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-8f1cba7 e-con-full e-flex e-con e-child\" data-id=\"8f1cba7\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-6fa8fb4 elementor-widget elementor-widget-n-accordion\" data-id=\"6fa8fb4\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;default_state&quot;:&quot;all_collapsed&quot;,&quot;max_items_expended&quot;:&quot;one&quot;,&quot;n_accordion_animation_duration&quot;:{&quot;unit&quot;:&quot;ms&quot;,&quot;size&quot;:400,&quot;sizes&quot;:[]}}\" data-widget_type=\"nested-accordion.default\">\n\t\t\t\t\t\t\t<div class=\"e-n-accordion\" aria-label=\"Accordion. Open links with Enter or Space, close with Escape, and navigate with Arrow Keys\">\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1170\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"1\" tabindex=\"0\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1170\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> Expand\/Enhance Caregiver Programs <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t<span class='e-closed'><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1170\" class=\"elementor-element elementor-element-a1010d9 e-con-full e-flex e-con e-child\" data-id=\"a1010d9\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b7ba12f elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"b7ba12f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<ul><li><strong>Burns, A., et al.<\/strong> <a href=\"https:\/\/www.kff.org\/medicaid\/how-do-medicaid-home-care-programs-support-family-caregivers\/\">How do Medicaid Home Care Programs Support Family Caregivers?<\/a> Kaiser Family Foundation.\u00a0 2025.<\/li><li><strong>Friedman, F. M. and Tong, P.K.<\/strong> <a href=\"https:\/\/www.rand.org\/pubs\/research_reports\/RRA105-1.html\" target=\"_blank\" rel=\"noopener\">A Framework for Integrating Family Caregivers into the Health Care Team<\/a>. RAND. November 2020.<\/li><li><strong>Flinn, B.\u00a0<\/strong> <a href=\"https:\/\/www.aarp.org\/pri\/topics\/health\/coverage-access\/medicaid-health-care-coverage-family-caregivers\/\">Medicaid Provides Critical Health Care Coverage to Family Caregivers<\/a>.\u00a0 AARP Public Policy Institute.\u00a0 2020.<\/li><li><strong>Kaye, N and Teshale, S.<\/strong> <a href=\"https:\/\/nashp.org\/medicaid-supports-for-family-caregivers\/\">Medicaid Supports for Family Caregivers<\/a>.\u00a0 <em>National Academy for State Health Policy (NASHP)<\/em>. October 2020.<\/li><li><strong>Miller, K.E., et al.<\/strong> <a href=\"https:\/\/pmc.ncbi.nlm.nih.gov\/articles\/PMC9576229\/pdf\/MILQ-100-854.pdf\">The Landscape of State Policies Supporting Family Caregivers as Aligned With the National Academy of Medicine Recommendations.<\/a> The Milbank Quarterly, Vol. 100, No. 3, pp. 854-878. 2022.<\/li><li><strong>National Alliance for Caregiving, Act on RAISE.<br \/><\/strong> <a href=\"https:\/\/www.advancingstates.org\/sites\/default\/files\/NAC_Policy-Brief-Medicaid_022425.pdf\">Policy Brief: The Role of Medicaid in Supporting Family Caregivers.<\/a> February 2025.<\/li><li><strong>Reinhard, S., et al.<\/strong> <a href=\"https:\/\/www.aarp.org\/pri\/topics\/ltss\/family-caregiving\/family-caregivers-and-managed-ltss\/\">Family Caregivers &amp; Managed Long-Term Services and Supports.<\/a> AARP. July 2016.<\/li><li><strong>Stein, JA. and Lipschutz, DA.<\/strong> <a href=\"https:\/\/medicareadvocacy.org\/wp-content\/uploads\/2020\/06\/Medicare-and-Family-Caregivers-June-2020.pdf\">Medicare and Family Caregivers<\/a>. Center for Medicare Advocacy. June 2020.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1171\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"2\" tabindex=\"-1\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1171\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> Financial Supports for Family Caregivers and Macroeconomic Consequences of Family Caregiving <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t<span class='e-closed'><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1171\" class=\"elementor-element elementor-element-628fc0e e-con-full e-flex e-con e-child\" data-id=\"628fc0e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-a9df53c elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"a9df53c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<ul><li><strong>Houser, A.\u00a0<\/strong>\u00a0<a href=\"https:\/\/www.aarp.org\/content\/dam\/aarp\/ppi\/topics\/ltss\/family-caregiving\/valuing-the-invaluable-2026-family-caregivers-contribution-reaches-1-trillion.doi.10.26419-2fppi.00402.001.pdf\" target=\"_blank\" rel=\"noopener\">Valuing the Invaluable 2026: Family Caregivers\u2019 Contribution Reaches $1 Trillion.\u00a0<\/a> AARP Public Policy Institute.\u00a0 2026.<\/li><li><strong>Johnson, R., et al.<\/strong> <a href=\"https:\/\/www.urban.org\/research\/publication\/lifetime-employment-related-costs-women-providing-family-care\">Lifetime Employment-Related Costs to Women of Providing Family Care<\/a>\u00a0 Urban Institute. 2023.<\/li><li><strong>Nadash, P., et al.<\/strong> <a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/36688324\/\">What do Family Caregivers Want? Payment for Providing Care.<\/a> J Aging Soc Policy. 2024 Jul 3;36(4):547-561<\/li><li><strong>Society of Actuaries.<\/strong> <a href=\"https:\/\/www.soa.org\/resources\/research-reports\/2023\/informal-caregiving-reducing-burden\/\">Informal Caregiving:\u00a0 Measuring the Cost and Reducing the Burden<\/a>. April 2023.<\/li><li><strong>The Century Foundation.<\/strong> <a href=\"https:\/\/tcf.org\/content\/report\/the-care-imperative-why-investing-in-care-grows-americas-economy\/\">The Care Imperative: Why Investing in Care Grows America\u2019s Economy<\/a>. 2023.<\/li><li><strong>Urban Institute.<\/strong> <a href=\"https:\/\/www.urban.org\/urban-wire\/unpaid-family-care-continues-suppress-womens-earnings\">Unpaid Family Care Continues to Suppress Women\u2019s Earnings<\/a>. 2022.<\/li><li><strong>Urban Institute.<\/strong> <a href=\"https:\/\/www.urban.org\/research\/publication\/economic-impacts-programs-support-caregivers-final-report\">Economic Impacts of Programs to Support Caregivers<\/a><em>.<\/em> 2020.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1172\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"3\" tabindex=\"-1\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1172\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> Workplace Supports <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t<span class='e-closed'><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1172\" class=\"elementor-element elementor-element-7cf48d5 e-con-full e-flex e-con e-child\" data-id=\"7cf48d5\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-8a717ff elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"8a717ff\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<ul><li><strong>Arora, K. and Wolf, D.<\/strong> <a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/29320809\/\">Does Paid Family Leave Reduce Nursing Home Use?\u00a0 The California Experience.<\/a> Journal of Policy Analysis and Management.\u00a0 Vol 37 (1). 2017.<\/li><li><strong>Donovan, S.<\/strong> <a href=\"https:\/\/www.congress.gov\/crs-product\/R44835\">Paid Family and Medical Leave in the United States.<\/a> Congressional Research Service. March 2025.<\/li><li><strong>Ty, D. and Shah, P.<\/strong> <a href=\"https:\/\/milkeninstitute.org\/content-hub\/research-and-reports\/reports\/supporting-family-caregiving-how-employers-can-lead\">Supporting Family Caregiving: How Employers Can Lead.<\/a> Milken Institute. 2025.<\/li><li><strong>Nadash, P., et al.<\/strong> <a href=\"https:\/\/doi.org\/10.1177\/07334648221125635\">Policies to Sustain Employment Among Family Caregivers: The Family Caregiver Perspective<\/a>.\u00a0 <em>Journal of Applied Gerontology<\/em>,\u00a0<em>42<\/em>(1), 3-11.\u00a0\u00a02022.<\/li><li><strong>Society for Human Resource Management (SHRM).<\/strong> <a href=\"https:\/\/www.shrm.org\/topics-tools\/research\/caregivers-in-the-workplace-insights-from-workers-and-hr-professionals\" target=\"_blank\" rel=\"noopener\">The Caregiving Imperative: Organizational Solutions for Supporting Caregivers and Elevating Business Performance. 2025 and Care and Careers: Navigating Caregiving and Work Responsibilities.\u00a0 2025<\/a>.<\/li><li><strong>Urban Institute.<\/strong> <a href=\"https:\/\/www.urban.org\/research\/publication\/paid-family-leave-challenges-and-experiences-family-caregivers-older-adults\">Paid Family Leave: Challenges and Experiences of Family Caregivers of Older Adults<\/a>. 2021.<\/li><li><strong>U.S. Chamber of Commerce Foundation.<\/strong> <a href=\"https:\/\/www.uschamberfoundation.org\/corporate-social-responsibility\/building-resilience-for-caregivers-how-employers-can-support-the-sandwich-generation\" target=\"_blank\" rel=\"noopener\">Building Resilience for Caregivers: How Employers Can Support the Sandwich Generation<\/a>. 2025.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1173\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"4\" tabindex=\"-1\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1173\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> Foundational and National Frameworks on Family Caregiving <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t<span class='e-closed'><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1173\" class=\"elementor-element elementor-element-72b1116 e-con-full e-flex e-con e-child\" data-id=\"72b1116\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-9883d22 elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"9883d22\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<ul><li><strong>Barkoff, A.<\/strong> <a href=\"https:\/\/www.healthaffairs.org\/content\/forefront\/reflections-caregiving-policy-progress-challenges-and-opportunities\">Reflections on Caregiving Policy:\u00a0 Progress, Challenges, and Opportunities<\/a>.\u00a0 Health Affairs. 2025.<br \/><br \/><\/li><li><strong>Nadash, P., et. al.<\/strong> <a href=\"https:\/\/nashp.org\/analysis-of-public-comments-on-the-national-strategy-to-support-family-caregivers\/\">Analysis of Public Comments on the National Strategy to Support Family Caregivers Perspectives and Priorities<\/a>. LeadingAge LTSS Center @UMass Boston. 2023.<br \/><br \/><\/li><li><strong>National Academies of Sciences, Engineering, and Medicine (NASEM).<\/strong> <a href=\"https:\/\/www.nap.edu\/catalog\/23606\/families-caring-for-an-aging-america\">Families Caring for an Aging America<\/a>. 2016.<br \/><br \/><\/li><li><strong>National Academies of Sciences, Engineering, and Medicine (NASEM).<\/strong> <a href=\"https:\/\/www.nationalacademies.org\/publications\/27416\">Supporting Family Caregivers in STEMM: A Call to Action<\/a>. 2024.<br \/><br \/><\/li><li><strong>U.S. Administration on Community Living. <\/strong><a href=\"https:\/\/acl.gov\/sites\/default\/files\/2024ProgressReport_StrategyToSupportCaregivers.pdf\">Progress Report on Federal Implementation of the National Strategy to Support Family Caregivers<\/a>. 2024.\u00a0<br \/><br \/><\/li><li><strong>U.S. Administration on Community Living.<\/strong> <a href=\"https:\/\/web.archive.org\/web\/20250211223806\/https:\/acl.gov\/CaregiverStrategy\"><em>2022 National Strategy to Support Family Caregivers.<\/em><\/a><em> 2022.<\/em>\u00a0<br \/><br \/><\/li><li><strong>U.S. Administration on Community Living.<\/strong> <a href=\"https:\/\/web.archive.org\/web\/20250211223815\/https:\/acl.gov\/sites\/default\/files\/RAISE_SGRG\/NatlStrategyFamCaregivers_ActionsSCO.pdf\">2022 National Strategy to Support Family Caregivers: Actions for States, Communities, and Others<\/a>. 2022.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1174\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"5\" tabindex=\"-1\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1174\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> Public Opinion, Caregiver Voices and Lived Experience <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t<span class='e-closed'><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1174\" class=\"elementor-element elementor-element-cf0558e e-con-full e-flex e-con e-child\" data-id=\"cf0558e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-707815e elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"707815e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<ul><li><strong>The SCAN Foundation.\u00a0<\/strong> <a href=\"https:\/\/www.thescanfoundation.org\/initiatives\/amplifying-the-voices-of-older-adults-what-the-people-say\/\" target=\"_blank\" rel=\"noopener\">Amplifying the Voices of Older Adults<\/a>. 2026.\u00a0<\/li><li><strong>Tell, EJ., et. al.<\/strong> <a href=\"https:\/\/nashp.org\/in-their-own-words-family-caregivers-from-across-the-country-share-their-priorities-and-recommendations\/\">In Their Own Words \u2013 Family Caregiver Priorities and Recommendations: Results from a Request for Information.<\/a> LeadingAge LTSS Center@UMass Boston. 2021.<\/li><li><strong>Tell, EJ., et al.<\/strong> <a href=\"https:\/\/ltsscenter.org\/reports\/Family_Caregivers_Report.pdf\">Building a National Strategy to Support Family Caregivers Findings from Key Informant\u00a0 Interviews and Stakeholder\u00a0 Listening Sessions<\/a>. LeadingAge LTSS Center @UMass Boston. 2022.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t<details id=\"glossary-directcare\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"6\" tabindex=\"-1\" aria-expanded=\"false\" aria-controls=\"glossary-directcare\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> Direct Care Workforce and Relationship to Family Caregiving <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t<span class='e-closed'><svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"glossary-directcare\" class=\"elementor-element elementor-element-1b25d00 e-con-full e-flex e-con e-child\" data-id=\"1b25d00\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-bc91f22 elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"bc91f22\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<ul><li><p><strong>Bipartisan Policy Center. <\/strong><a href=\"https:\/\/bipartisanpolicy.org\/report\/addressing-the-direct-care-workforce-shortage\/\">Addressing the Direct Care Workforce Shortage: A Bipartisan Call to Action.<\/a> 2023.<\/p><\/li><li><p><strong>Houser, A.<\/strong>\u00a0<a href=\"https:\/\/www.aarp.org\/content\/dam\/aarp\/ppi\/topics\/ltss\/ltss-becoming-more-unaffordable.doi.10.26419-2fppi.00400.001.pdf\">Long-Term Services and Supports Are Becoming Even More Unaffordable for Middle-Class Americans<\/a>.\u00a0<strong>AARP Public Policy Institute.<\/strong> <a>2026. <\/a>AARP. <a href=\"https:\/\/www.aarp.org\/content\/dam\/aarp\/research\/surveys_statistics\/ltc\/2021\/caregiving-tax-credit-in-home-care-bipartisan-support-report.doi.10.26419-2Fres.00486.001.pdf\">National 50+ Voter Survey on Family Caregiving and Long-Term Services and Supports<\/a>.\u00a0<a>2021<\/a>.<\/p><\/li><li><p><strong>LeadingAge.<\/strong> <a href=\"https:\/\/leadingage.org\/wp-content\/uploads\/2022\/04\/Workforce-Vision-Paper_FINAL.pdf\" target=\"_blank\" rel=\"noopener\">Feeling Valued, But Not Seen: Home Care Workers in the U.S.<\/a> 2022.<\/p><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-f75fa06 e-flex e-con-boxed e-con e-parent\" data-id=\"f75fa06\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Caregiving Compendium Additional Reading The resources below provide additional context to support a deeper understanding of family caregiving policy, research, and lived experience. Organized by key topic areas reflected in the compendium, these materials highlight the breadth of evidence shaping federal and state approaches to caregiving\u2014including program design, financial impacts, workplace policies, and national frameworks. [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"nf_dc_page":"","footnotes":""},"class_list":["post-6939","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Caregiving Additional Reading - Explore LTSS Initiatives - Interactive Compendium of Federal LTSS Financing Policy Options<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/exploreltssinitiatives.org\/caregiving-additional-reading\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Caregiving Additional Reading - Explore LTSS Initiatives - Interactive Compendium of Federal LTSS Financing Policy Options\" \/>\n<meta property=\"og:description\" content=\"Caregiving Compendium Additional Reading The resources below provide additional context to support a deeper understanding of family caregiving policy, research, and lived experience. Organized by key topic areas reflected in the compendium, these materials highlight the breadth of evidence shaping federal and state approaches to caregiving\u2014including program design, financial impacts, workplace policies, and national frameworks. [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/exploreltssinitiatives.org\/caregiving-additional-reading\" \/>\n<meta property=\"og:site_name\" content=\"Explore LTSS Initiatives - Interactive Compendium of Federal LTSS Financing Policy Options\" \/>\n<meta property=\"article:modified_time\" content=\"2026-05-29T12:14:14+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"7 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/caregiving-additional-reading\",\"url\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/caregiving-additional-reading\",\"name\":\"Caregiving Additional Reading - Explore LTSS Initiatives - Interactive Compendium of Federal LTSS Financing Policy Options\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/#website\"},\"datePublished\":\"2026-02-19T22:59:59+00:00\",\"dateModified\":\"2026-05-29T12:14:14+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/caregiving-additional-reading#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/exploreltssinitiatives.org\\\/caregiving-additional-reading\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/caregiving-additional-reading#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/staging\\\/4085\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Caregiving Additional Reading\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/#website\",\"url\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/\",\"name\":\"Explore LTSS Initiatives - Interactive Compendium of Federal LTSS Financing Policy Options\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/#organization\",\"name\":\"Explore LTSS Initiatives - Interactive Compendium of Federal LTSS Financing Policy Options\",\"url\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/staging\\\/4085\\\/wp-content\\\/uploads\\\/2025\\\/07\\\/LTSS-Logo-final-web.jpg\",\"contentUrl\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/staging\\\/4085\\\/wp-content\\\/uploads\\\/2025\\\/07\\\/LTSS-Logo-final-web.jpg\",\"width\":294,\"height\":124,\"caption\":\"Explore LTSS Initiatives - Interactive Compendium of Federal LTSS Financing Policy Options\"},\"image\":{\"@id\":\"https:\\\/\\\/exploreltssinitiatives.org\\\/#\\\/schema\\\/logo\\\/image\\\/\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Caregiving Additional Reading - Explore LTSS Initiatives - Interactive Compendium of Federal LTSS Financing Policy Options","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/exploreltssinitiatives.org\/caregiving-additional-reading","og_locale":"en_US","og_type":"article","og_title":"Caregiving Additional Reading - Explore LTSS Initiatives - Interactive Compendium of Federal LTSS Financing Policy Options","og_description":"Caregiving Compendium Additional Reading The resources below provide additional context to support a deeper understanding of family caregiving policy, research, and lived experience. Organized by key topic areas reflected in the compendium, these materials highlight the breadth of evidence shaping federal and state approaches to caregiving\u2014including program design, financial impacts, workplace policies, and national frameworks. 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