AARP: Respite Services: A Critical Support for Family Caregivers
Policy brief explores how respite care impacts family caregivers, and
the barriers to its use. It reviews innovative federal and state programs
that provide and/or pay for respite care.
National Alliance on Caregiving: Strengthening the National Strategy to Support Family Caregivers – A Medicare Policy Framework
This policy brief explores a set of federal policy options to enhance
Medicare’s support for family caregivers and to improve access to
HCBS.
Bipartisan Policy Center: The Growing Cost of Inaction: A Practical Framework for Addressing the Long-Term Care Financing Challenge
This report describes long-term care financing and the challenges of
providing long-term care to our growing aging population.
Institute for Women’s Policy Research: Promoting Access to Care: Caregiving and Families
This report highlights the nationwide crisis driven by decades of
underinvestment in childcare and long-term care, leaving families
unable to afford needed services and without caregiving support.
Alleviating Barriers for Caregivers (ABC) Act
The bill amends the Public Health Service Act to increase the number of permanent palliative care faculty at: accredited allopathic and osteopathic medical schools; nursing schools; and other programs to promote education and research in palliative care and hospice.
AARP: Spectrum of Financial Supports for Family Caregivers
Details the financial impact of caregiving. Report proposes state and
federal policies to address caregivers’ economic challenges.
Recommendations are summarized below.
Oxfam: Unseen Work, Unmet Needs: Exploring the intersections of gender, race and ethnicity in unpaid care labor and paid labor in the U.S.
This report explores disparities in unpaid care and the inequities in the
paid labor force. It focuses on the disproportionate challenges women
of color face in both paid and unpaid labor.
Connecting Caregivers to Medicare Act of 2024
Improves caregiver access to information on Medicare and on the beneficiary authorization process.
Essential Caregivers Act of 2024
Ensure that essential caregivers of residents of Medicare and Medicaid-funded facilities maintain access to residents during designated emergency periods when visitation is otherwise restricted.
The Commonwealth Fund, 2023: Policy Options to Support Family Caregiving for Medicare Beneficiaries at Home
This report draws on caregiver surveys, focus groups, and expert interviews to illustrate the emotional, financial, and logistical burdens faced by family caregivers of Medicare beneficiaries.